Because of the problems with Tristan last night, I felt like I should hold him all night, pray over him and closely watch him to make sure his color didn't change again. Fortunately, his color did not change, he slept very well and his apnea monitor only went off once. The excitement for today? Simply that Tristan made it through the night and is still with us today. Yes, it's that simple. We have not taken one day for granted while on this "Trisomy 18 road" however there's just something about believing last night might be "the end" that renewed our hearts and minds and reminded us why we live only for today and why we live in the moment. Tristan had a great day and I pretty much held him most of the day. He was very alert which is unusual, he normally sleeps all day and is awake all night but since we put him on the oxygen 24 hrs. a few days ago we have continued to see him sleep really good at night and then be more alert during the day. After last night being so rough, it was so exciting and comforting to see Tristan's sweet little face and his eyes wide open looking back at me as to say, "I love you mommy". We still listened to Christmas music during dinner, because we promised Tanner we'd celebrate Christmas until January 1st, and then we had another fun night of playing with more of Tanner's new Christmas toys. Please pray for Tristan's strength and please pray for us as we face another new day tomorrow.
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I have never left a comment before, but I wanted you to know that I am praying for you from Springdale, Arkansas. I have had two friends that have had Trisomy 18 babies, and have marved at how God has worked in each families lives. You are a blessing to so many. Everyday that I read your blog, I am reminded of God's goodness and mercy. I will continue praying for you and your precious family, that God will give you strength. Thank you for sharing your life and for being such a witness to all that are able to read this blog. Thank you for reminding this mom of three what a precious gift from God our Children are.
Thank You, Michelle
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