Day 22 - 22 candles lit for Tristan

We had another long night because we took turns watching Tristan to make sure the oxygen tube did not fall down and get caught in his mouth or around his neck, Hospice is bringing some special tape for his face sometime this week. We were expecting a call back from the geneticist however we received a call from one of his associates in that he is out-of-town for the holidays. She said that the change in Tristan's color is probably "the change" we had been told to look for, to keep Tristan on the oxygen 24 hrs. a day and that the geneticist would give us a call later in the week. Besides his color change that only happened Sat. and Sun., Tristan has been doing so well, he is now at 21 ml of formula and ready to graduate to the next size feeding syringe and his demeanor is still the same (wide-eyed and very alert AT NIGHT). Although we know each new day draws closer to the end, it is so very, very hard to hear someone say that this is probably "the change"! We look forward to speaking with the geneticist at the end of the week for his personal opinion. Tristan is 3 weeks old today and because we've been at home every day since Tristan was born and the fact that Christmas is tomorrow, Trayc and Tanner went Christmas shopping together for a few hours and then we spent the rest of the day as a family wrapping last minute gifts and getting the house ready for Christmas tomorrow. Tonight we listened to Christmas music while we ate dinner, we made a Christmas ornament that said "Day 22, Tristan, We love you, Daddy, Mommy, Tanner and Tayden, Dec. 24, 2007" and then we had our own candlelight service because we were not able to attend our church's candlelight service. We sat around the table and listened as Trayc read the Christmas story from Luke 2, then we took turns lighting 22 candles, one for each day that Tristan has been with us so far (Tanner came up with the idea to arrange them in the shape of a "T" to represent Tristan) and after the last candle was lit we took turns praying and thanking the Lord for the past 22 days. It was a very sweet time and a night we will always remember! We took lots of pictures and then we helped Tanner and Tayden get the cookies and milk ready for Santa Claus. Please pray that the oxygen will help Tristan so that his color will not change, please pray for continued strength for Tristan, please pray that Tristan will make it through Christmas Day (huge prayer request!!!!!) and for us as we face another new day tomorrow.