Tristan had another great night sleep! His apnea monitor did not go off and his color did not change but we are still having to watch him when he eats because his reflux causes some of the formula to come up so I don't want him having that run down the sides of his little mouth so we watch him so we can keep wiping it off. I stayed up from 10:30 pm-1:45 am and Trayc took the shift from 1:45am-6:00 am. What honor we feel that the Lord has allowed us the opportunity to have such sleepless nights! Tristan is definitely handling the increased feedings which is great, he needs to be at 27 ml by Wednesday per his Nutritionist.
Today we really didn't do much, just had a relaxing day as a family around the house. I am really desiring to take Tristan out in public and start doing things as a family of 5 now that he's doing so good and because we've made it to Day 55. If anything, I'd at least like to return back to church on Sunday mornings. It's been cold here so we won't go tomorrow because we certainly don't want to risk him getting sick especially with the doctors appts. and possible surgeries coming up. So, we'll wait until the weather gets a little warmer and until then we'll keep coming up with creative ideas to do at home with him - which is really more fun than going out anyway, especially for Tanner and Tayden.
As you know we have 2 big appts. on Monday and Tuesday. On Monday, we meet with the Ped-Surgeon regarding Tristan's hernias and possible G tube. On Tuesday, Tristan has an upper GI done to confirm the reflux so that we can change his medicine to something a little stronger. We may have a lot of decisions to make this week which I am very scared about because I am not comfortable with the idea of Tristan going under sedation. However, I also do not want us to be in a situation where we have to go to the Emergency Room because the hernias have ruptured. I am hoping that the Ped-Surgeon does not feel as though the hernias are a problem right now and that we could wait a little longer until Tristan is older and has gained some more weight.
Please pray for Tristan's strength, please pray for us as we may be faced with several medical decisions in the next 2 days and please pray for us as we face another new day tomorrow.
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5 comments:
Oh, this was so heartbreaking to read, since it was posted after Tristan died.
Thank you, though, for posting it. I was curious what Tristan's Day 55 was like.
I'm still praying.
Much love...
Rebecca
Trayc, Yvette, Tanner and Tayden,
"In the quiet moments when the hurt is hard to bear, may love become your shelter and the beauty of precious memories be your comfort. You are held in gentle thought and prayer."
I know that this was posted after Tristan went to be with Jesus, but I enjoy so much, hearing about each and every day of this little angels life.
I am lifting your family to the Lord hourly as your destination changed again from Holland to Heaven for Tristan. You blessed his life for 56 most treasured days and I know he blessed yours equally. I believe with all of my heart that God knew the surgeries ahead would be unbearable for all of you. This does not make the pain of loss any lighter on your broken hearts and I pray He sustains you in the days, weeks, and months ahead. My prayers for you will not cease. I love you guys.
Laurie in Ca.
Trayc,Yvette,Tanner and Tayden - Tristan was so blessed to have you as his family. When I sat and followed your "life" story, I could feel the love, joy and commitment that you had for Tristan. I could also sense that every decission was handed over to God and that all you really wanted was what was best for Tristan. What amazing love that is. He was so blessed by all of you.
Still Praying
Thank you for posting Day 55, even after Tristan physically left you. It was nice to read that his final days were well spent, in the loving care of his family. Not many people can say that.
I believe the Lord knew that the impending surgeries and tests would be too much for his little body to bear.
Your family continues to be lifted up in prayer.
I was just checking your blog again for updates and saw that you added day 55. It is so good to see that you guys had a sweet "family day" around the house. Who would have known that Tristan would be going to heaven so soon!
Even though you guys are experiencing a pain that must be crushing, please take solace in knowing that Tristan's life reached more people for Jesus in his short 55 days than many people reach in 55 years! What a big testimony for such a little guy - He was truly an angel on earth!
May you find comfort in reading the many entries that friends and complete strangers (like myself!) have written, as Tristan has touched each of us in a unique way as only God could have planned! May you constantly feel the prayers we are all sending up to heaven on your behalf.
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