Tristan slept really good until 3:00 am when he decided to stay WIDE AWAKE from 3:00-6:00 am! He wasn't fussing or crying, just awake, but when he is awake I want to make sure I am right there - in his face - rubbing his head, talking to him, praying with him and kissing on him. Because his heart is working so much harder now, he sleeps quite a bit so I want to make sure I don't miss a minute when he's awake because I never know when the last night might be that I am able to do this, even though it makes for a very tired mommy the next morning! Tristan had a good day today, we upped his feeding from 24 ml to 25 ml and he is tolerating the increase so far which is great because we really need to get him to 27 ml by Wednesday per the nutritionist, she has him on a weight gaining plan.
I realize I've given a lot of information about Tristan's health the last few days so I decided to post on the lighter side. Tanner and I went to the outlet mall tonight and Tanner picked out the outfit Tristan is wearing. It is so cute, it has puppies all over it and the footies have puppy faces on them. Tanner could not wait to get home and dress Tristan in it and have his picture taken with him and the puppy Tanner gave Tristan when he was born. It was the perfect time for pictures because Trayc had just removed the feeding tube and I just love seeing his little lips, we don't get to see them much because of all the tape. It is so sweet when we talk to him, he moves his lips around and makes sounds like he's trying to talk back (see the top picture).
Please pray for Tristan's strength, please pray for Trayc and I as we make decisions regarding Tristan's future medical care and please pray for us as we face another new day tomorrow.
23 comments:
He looks just like Tanner! Such an adorable babe :) I am so glad you get to spend so much time with him. I'm praying for wisdom for his doctors, so they know precicely the right time to do all things necessary, so that Tristan pulls through just fine.
I am astounded daily by your strength and grace. Does it ever get to where you just want to crawl into a hole and sob?
Prayers from Australia. (I like to think I get the night shift *grin*)
Jenny.
I am so drawn to your blog, i check several times a day to check on his progress. It is wonderful to see him flourshing. Stay strong!
I agree, he has the sweetest little mouth and expression on his face. He just amazes me and I feel the miracle each and every time I come here. Tanner is the proudest big brother I have ever seen. Praying for a good night and for the Lord to give you clear decisions and peace with each one as you care for this little angel.
Love, Laurie in Ca.
I absolutely love the new puppy pictures! Praying for you each night and then the next day. You are such an encouragement to me. Thank you for sharing your journey with me.
Michelle
ADORABLE!!! It is so amazing that that much cuteness can be contained in a precious baby! Tanner is so sweet with him! praying for you and the decisions you are making! WhoooHooo 53Days! jen in al
So very sweet!
This grandmother in Alabama checks on Tristan every day. Your love and concern for this child are so evident, and I realize that many of the decisions that you are about to face will be difficult. It is hard to say what one would do in your shoes, but I feel that you are doing what is best. Since Tristan has been such a surprise, one would have to move forward with the proper medical procedures. You can't think ahead to what might be, but you have to handle each day for what it is- and for now those days are filled with a newborn with special needs. Give him every opportunity, and you will have no regrets. I will continue to pray for this sweet child.
It seems that the angels are constantly attending Tristan through Tanner, Tayden, Trayc and you as well as through the doctors, nurses, receptionists and friends. I know that the blogosphere is continually offering prayers in Tristan's behalf. I am praying that today is another blessed day and you enjoy having him with you.
Yvette, your courage is so very inspiring. Your anchor of faith is sunk deep. Isn't it awesome that God uses the technology that we have to allow you to witness to the world.
Much love to your family today!
Praying for lots more kisses for your on that precious little mouth!
Cathy & Annabel
That baby is precious beyond words. And so blessed to have a mom, dad, and brothers who are giving him loads of love and the best care possible. My heart rejoices over every additional day you are granted with your special angel. May there be many, many more!
He is adorable!! It looks like he is blowing you a kiss. We have never even met you guys, but we feel like you are a part of our family. We love checking on Tristan and the family.
I pray that you get some sleep today and that Tristan remain strong.
We love you!!!
The Beasleys
How sweet!! I love the puppy outfit. Tanner did a great job! I am praying for you and your drs as you have to make decisions reguarding Tristan's health. I know that you will make the right decisions. What a miracle sweet Tristan is. May God continue to hold him in His hands.
These are so sweet...I read everyday....and just love you and your preciouse family....and I am praying and have been.
Deby
Seattle area
I just came across your story~ So inspirational. Your little man looks incredibly handsome in his new outfit. Way to go, big brother!
Honestly, if you were to put a pair of glasses on Tristan, they could be twins! LOL! Tristan's face looks fuller, I love it! Thank you for the wonderful pictures!
Still praying hard...
Mary
Well, I think that is just about the cutest picture I've seen! He really is precious. I have fallen in love with your family and especially that sweet little fella! I check for new postings many times daily and I love to read about your love for all of your boys. I have 2 little boys and we pray for your family everyday. We will continue to pray and know that God is with you through all of this.
Emily
How adorable! Thank you so much for sharing your beautiful son with all of us. Through your blog I feel I have come to "know" and love Tristan. He is such a wonderful gift from God.
Thanks once again for sharing your journey with us. I am encouraged, humbled and spurred on to love my children more, hug them often and appreciate every hour with them.
I'm praying for you as you and your husband face upcoming appointments and decisions.
God is faithful.
you boys are just so adorable!
We love to see Tristan's eyes, he looks very alert and CUTE!!!
Thank you for the pictures.
We will keep praying.
The Magana family
St. Augustine, Fl
I've been following your blog and praying for you guys for about 2 weeks now. That picture of Tristan is so beautiful. His little lips are so so precious. I'll keep praying.
Angela in central Ohio
He's gorgeous. :) And he has an awesome big brother!
Tristan is SO cute! He has the sweetest little lips! Praying for you...Jenny
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